World Federation of Hemophilia – International federation dedicated to promoting the high standards of medical care for hemophiliacs.
National Hemophilia Foundation – NHF makes an important difference in the lives of people and families with bleeding disorders.
Hemophilia Federation of America – Advocacy organization established for the purpose of serving as a patient advocate for, but not limited to, product safety, treatment, insurance and quality of life issues in a positive and pro-active manner.
HepC Connection – A Hepatitis C network and support system located in Denver, Colorado.
patientnotificationsystem.org – Sign up for notification of factor/product recalls and other important up to date information regarding bleeding and clotting disorder medication alerts.
LA Kelley Communications, Inc. – Provides tools and publications that speak to you, parent to parent, patient to patient, with the single goal of helping you master your world of bleeding disorders, plus other information like scholarships and community news.
Patient Services, Inc. (PSI) – Provides assistance with insurance premiums for qualifying individuals with chronic disorders.
Committee of Ten Thousand – A central theme of the COTT is the development and implementation of programmatic initiatives which illuminate an empowerment road map for the diverse communities impacted by HIV/AIDS and other chronic diseases/disorders.
medicalert.org – MedicAlert Foundation is a nonprofit organization providing 24-hour emergency medical information and identification service.
Bad Blood – A Cautionary Tale – A documentary film by Marilyn Ness – Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans.
NHF’s Research Grants and Fellowships – NHF funds Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease.
NHF’s Medical and Scientific Advisory Committee (MASAC) – In 1954, the National Hemophilia Foundation formed a medical advisory council to advance clinical care and promote hemophilia research.
UDC/ATHN, Patient Notification System – The industry-wide Patient Notification System informs people when a blood product is withdrawn or recalled.
NHF’s Steps for Living – Steps for Living is your one-stop resource for information on bleeding disorders for kids, adolescents, parents and health educators to promote healthy living for the whole family.
NHF’s Victory for Women – Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.
Foundation for Women & Girls with Blood Disorders – Dedicated to education and awareness for women and young girls with bleeding disorders.
Emergency Readiness for People with Disabilities – To help people forced to quickly leave or be confined in their home unexpectedly. Blog about emergency preparedness.
