Texas Central Hemophilia Association

  • About Us
    • What is a Bleeding Disorder?
    • Leadership
    • Contact Us
  • Our Community
  • Programs
    • Support Groups
    • Education Days
    • Camp Ailihpomeh
  • Events
    • Texas Bleeding Disorders Conference
    • Unite Walk-DFW
    • Spring Education Event and Loteria
  • Calendar
  • Advocacy
  • Resources
    • Hemophilia Treatment Centers
    • Patient Assistance Programs
    • Helpful Links
    • Scholarships
  • Donate

Helpful Links

World Federation of Hemophilia – International federation dedicated to promoting the high standards of medical care for hemophiliacs.

National Hemophilia Foundation – NHF makes an important difference in the lives of people and families with bleeding disorders.

Hemophilia Federation of America – Advocacy organization established for the purpose of serving as a patient advocate for, but not limited to, product safety, treatment, insurance and quality of life issues in a positive and pro-active manner.

HepC Connection – A Hepatitis C network and support system located in Denver, Colorado.

patientnotificationsystem.org – Sign up for notification of factor/product recalls and other important up to date information regarding bleeding and clotting disorder medication alerts.

LA Kelley Communications, Inc. – Provides tools and publications that speak to you, parent to parent, patient to patient, with the single goal of helping you master your world of bleeding disorders, plus other information like scholarships and community news.

Patient Services, Inc. (PSI) – Provides assistance with insurance premiums for qualifying individuals with chronic disorders.

Committee of Ten Thousand – A central theme of the COTT is the development and implementation of programmatic initiatives which illuminate an empowerment road map for the diverse communities impacted by HIV/AIDS and other chronic diseases/disorders.

medicalert.org – MedicAlert Foundation is a nonprofit organization providing 24-hour emergency medical information and identification service.

Bad Blood – A Cautionary Tale – A documentary film by Marilyn Ness – Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans.

NHF’s Research Grants and Fellowships – NHF funds Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease.

NHF’s Medical and Scientific Advisory Committee (MASAC) – In 1954, the National Hemophilia Foundation formed a medical advisory council to advance clinical care and promote hemophilia research.

UDC/ATHN, Patient Notification System – The industry-wide Patient Notification System informs people when a blood product is withdrawn or recalled.

NHF’s Steps for Living – Steps for Living is your one-stop resource for information on bleeding disorders for kids, adolescents, parents and health educators to promote healthy living for the whole family.

NHF’s Victory for Women – Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.

Foundation for Women & Girls with Blood Disorders – Dedicated to education and awareness for women and young girls with bleeding disorders.

Emergency Readiness for People with Disabilities – To help people forced to quickly leave or be confined in their home unexpectedly.   Blog about emergency preparedness.

 

 

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Our Mission

The mission of the Texas Central Bleeding Disorders (TCBD), in support of North Texans with bleeding disorders, is to promote advocacy, to support efforts for finding a cure, to increase awareness within the general public and to provide a support network for our community members.

 

Our Sponsors

Pfizer

Texas Central Bleeding Disorders

12700 Hillcrest Road, Suite #191
Dallas, Texas 75230
P: 972.386.3865
E: mail@texcen.org

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    The information contained on the Texas Central Bleeding Disorders (TCBD) web site is provided for your general information only. TCBD does not give medical advice or engage in the practice of medicine. TCBD under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment. Copyright © 2023 · Texas Central Bleeding Disorders